Thanks for your ongoing prayers in behalf of Jerard and our family.
Jerard hopefully will be discharged tomorrow.
He is eating , and has had no seizures for over 48 hours.
He still doesn't drink well but he enjoys being spoon fed banana/kamote/Isomil 'smoothies' so he is getting his liquid!
He will need another shunt operation but the doctor wants to wait two - four weeks to give his pneumonia time to totally clear up.
Please pray for financial provisions for this surgery.
He is still very weak on his left side but showing some improvement. His medications have been switched to oral except for his antibiotics. He will come home with a heparin lock for the rest of his antibiotics to be given. We've dealt with that before at home and can do it again.
Thanks for continuing to pray for him (and for us).
I have been more awake today.
They took the tube out of my nose
but they said they might have to put it back in if I don't eat or drink well. I'm not sucking really well.
I don't like to move the left side of my body either.
But I did smile twice at my Mom today. But she said only the right side of my mouth went up.
The neurologist, Dr. Soriano, (I like him - he's done all my surgeries)
said it looks like I need another shunt. My right ventricle is not being drained by the shunt on the left side of my head. Maybe that's why I've been having so many headaches.
And today I've been crying and rubbing the right side of my head a lot. It really hurts.
They did move me into a regular room today. I hope I can stay here and not have to go back to ICU.
Thanks for your prayers for me. Please keep praying I get better soon. Pray for my Mom and Dad and my brothers and sisters.
Keep my doctors in your prayers too. I like them and they seem to be doing a good job taking care of me.
I haven't had any seizures for over 36 hours now!
Psalm 10: 16 The LORD is king forever and ever; the nations perish from his land.
17O LORD, you hear the desire of the afflicted; you will strengthen their heart; you will incline your ear
18to do justice to the fatherless...
Just for a change of pace in our blog I thought I'd put a few photos in of a project that is on hold for now.
I'm hoping to repaint the kitchen in a more coffee shop motif.
I have arranged empty starbucks bags of coffee, mugs, and a coffee maker that no longer works on top of the cabinets to be part of this redecorating!
After Jerard gets out of the hospital we may get to the painting!
I'm not sure what to tell you all.
He is no better. He seems a bit worse.
He has developed a hospital-induced staph infection which means he is now on two strong antibiotics.
He had 4 seizures early this a.m.
He had a CT scan today.
The shunts seems to be working but because of repeated episodes of fever spikes and seizures, the doctor is drawing off some ventrical fluid through one of his shunts to test the fluid for possible infection.
He has some blood in his stools which they think is from not eating and stress from the seizures. Hopefully today they will start him on Isomil. Yesterday, he had a nasogastric (ng) tube put in but because there was bloody discharge from his stomach they could not start feeding him. Today the fluids are much, much clearer. So pray they will start feeding him.
Keep him in your prayers.
Thank you for praying for me.
Please keep it up.
I haven't had any seizures since yesterday around noon.
I'm in a room with all kinds of tubes and wires and beeps and people coming in and out.
Today my eyes were open more. My Mom said they were giving me blood. I really don't like the IV needle in my foot. I kept trying to kick at it but my Mom or someone put a blanket in the way so I couldn't.
I started lifting my right arm today and playing a little bit with my alphabet wheel. I like to spin it and hear it sing.
I cough a lot but it's phlegm. I don't eat on my own. My left side doesn't like to move much. Someone stuck a tube down my nose into my stomach to feed me Isomil. I can't wait til that comes out.
I was trying to pull that out too but the nurse tied a cloth to my arm and to the bed so I couldn't reach up to pull it out.
Keep me in your prayers, please. The doctors are happy to see me more awake today but I don't feel like moving much. Pray I don't have anymore seizures and that the medicines they want to give me orally will help me not have any.
I guess I'll be in the hospital a few more days. They want me to eat on my own but I have no desire even to suck on a sippy cup right now. I'm just really, really tired!