Jerard Update 4/6/12

Jerard is pretty much a new born child in a four-year old body.
He does not make noise or move. Whatever position we put him in he stays in. Here are some pictures from the past few days.

Jerard likes his head rubbed. James likes to rub his brother's head.
James often goes up to Jerard and says, "I love you, Jerard."

Serve, Sweat, Grow

Mikayla is out in Cagayan de Oro with the high school for outdoor education. They are working with Habitat for Humanity to help build houses for people who lost their houses in flooding. They have seen the "tent town" where the villagers have been living since the flooding. They are also assisting in helping a church rebuild.
Today, I was able to find a few pictures on FaceBook to share with you all about their trip. This is from their worship time this morning at the church they are assisting.

After School Basketball

For four weeks Ben is participating in after school elementary basketball.
It meets twice a week. He is really enjoying it.

New Normal

After consulting with three of Jerard's doctors yesterday, this is what we've learned :
~The function Jerard lost in this last major seizure episode he will most likely not regain. We'd noticed that also from his seizures in 2010 - after losing the left side function of his body he really hadn't regained any use even with physical therapy.
So we are looking at a "new normal". He is quiet, doesn't move much. He will continue to be fed with a naso-gastric tube for another 3 - 4 months. Then, if no swallowing has returned, he will have a permanent tube inserted into his stomach (so he doesn't have a tube hanging out of his nose all the time.)
He continues to take two anti-seizures medications and get nebulized every four hours for breathing.

Warrior Testimony

Thursday, Ben's karate sensa, Nell, spoke at the Faith Academy Elementary Chapel with his Buishido Kai Karate Team.
He had a great message on being a warrior in Christ, hiding God's word in our hearts, and walking in the full armor of God.
Ben was able to participate in the karate demonstration.